Who is it for and what is it about?

 In collaboration with IRCCS NATIONAL TUMOR INSTITUTE FOUNDATION, we are spreading a questionnaire to study the impact of a diagnosis of desmoid tumor on the lives of women during their fertility age.

The results of this study will help understand how desmoid tumor influenced your choices about pregnancy.

It is an international project that involves other Research Clinical centers all over the world: Istituto dei Tumori di Milano, Azienda Ospedaliera di Padova, Institut Curie (Paris), Mont Sinai Hospital (Toronto), Brigham and Women’s Hospital (Boston) with the collaboration of many Patient Associations as Desmoid Foundation ONLUS (Italy), SOS Desmoid (France), DTRF Organization (USA), DTRF Canada, Brazilian Desmoid Community (Brasil), and Desmoid community UK.

Your support will make a huge difference!

If you are a woman diagnosed with desmoid tumor DURING your fertility age, fill out the questionnaire and support the research! 

Scientific research starts with us!

TO CONSENT AND FINALIZE YOUR PARTICIPATION IN THE STUDY, IT’S MANDATORY TO CONFIRM YOU IDENTITY. THERE ARE 2 OPTIONS:
1) SEND A COPY OF YOUR IDENTITY DOCUMENT ON THE OFFICIAL WHATSAPP NUMBER OF THE DF – DESMOID FOUNDATION – ITALIAN ASSOCIATION TUMORE DESMOIDE ONLUS:
+ 39 3518279997
2) PRINT THE PDF PRIVACY POLICY CONSENT TO DOWNLOAD FROM THE KEY “DOWNLOAD  THE PRIVACY DOCUMENT” AND SEND IT BACK SIGNED TO THE EMAIL info@desmoidfoundation.org OR TO DEDICATED WHATSAPP NUMBER
+ 39 3518279997

* FAILURE TO SEND THE PHOTO OF YOUR IDENTITY DOCUMENT OR THE SIGNED PRIVACY POLICY CONSENT WILL RESULT IN EXCLUSION FROM THE CLINICAL STUDY